John Edwards speaks to James Lowe, in Wise, Virginia in July of 2007.
This today in the NYTimes Magazine needs discussion:
It was 3 a.m. at the Wise County Fairgrounds in Virginia — Friday, July 20, 2007 — the start of a rainy Appalachian morning. Outside the gates, people lay in their trucks or in tents pitched along the grassy parking lot, waiting for their chance to have their medical needs treated at no charge — part of an annual three-day “expedition” led by a volunteer medical relief corps called Remote Area Medical.
The group, most often referred to as RAM, has sent health expeditions to countries like Guyana, India, Tanzania and Haiti, but increasingly its work is in the United States, where 47 million people — more than 15 percent of the population — live without health insurance....
And so each summer, shortly after the Virginia-Kentucky District Fair and Horse Show wraps up at the fairgrounds, members of Virginia Lions Clubs start bleaching the premises, readying them for RAM’s volunteers, who, working in animal stalls and beneath makeshift tents, provide everything from teeth cleaning and free eyeglasses to radiology and minor surgery....more than 800 people already were waiting in line. Over the next three days, some 2,500 patients would receive care, but at least several hundred, Brock estimates, would be turned away....
We are one of the richest countries in the world, and these people camp out with their children in an abandoned fairground, scrambling to be one of the few at a barely sterilized horse stall in a sea of people who are equally desperate -- and grateful -- to receive medical care.
In America.
Back in July, 2007, the Edwards campaign visited rural Appalachian Virginia. I remembered seeing this video from the campaign, because the man in it -- James Lowe -- had such a poignant, difficult story to tell. That he could tell it at all was due to the gift of medical care from those same doctors, who stepped in to help him after James had spent a lifetime -- close to 50 years -- in silence. From Time Magazine:
Lowe is 51 years old, a disabled coal miner from the hollows of Eastern Kentucky. He has never been one to get up in front of a crowd. Until last year, he wouldn't have been able to speak to the crowd even if he wanted to. He was born with a severe cleft palate; when he tried to talk he could not make himself understood, so after a while he stopped trying. He was one of 10 children, born to parents too poor to pay for the treatment he needed, and of course there was no insurance. Embarrassed by his condition, Lowe dropped out of school in fifth grade without learning to read or write, and eventually followed his father into the mines — and still couldn't afford treatment. Twenty-three years ago he was partially paralyzed in a mining accident and could no longer perform manual labor. That didn't leave him many options.
Lowe lived a mute and by his own account diminished life for five decades in all before he finally got a break last year. He made it happen by standing in line for 13 hours at the Wise Country Fairgrounds in the mountains of southwestern Virginia, where a nonprofit volunteer group called the Rural Area Medical Health Expedition once a year provides free medical and dental treatment to all comers. For thousands of men and women like Lowe who crowd the health fair every year, it represents the only medical care they ever receive. The dentists couldn't help Lowe on the spot but got him in to see someone who could, and now he has a dental prosthesis that allows him to speak pretty well....
I live in West Virginia, and have relatives and have known folks who have had to deal with no insurance and chronic conditions my whole life. And not just years ago, either, I mean people today. But it was Lowe's stoic and humble pride in his newly found voice that spoke to the resiliant strength of the human spirit, and the amazing gift that you can give to others with a single act of kindness. And his story stuck with me.
I don't know what the answer is to the intertwined mess that is our health care system, our mental health care safety net (which is nearly nonexistent), our education and workforce issues, chronic generational poverty, the desperate need for primary care doctors in rural America, and every other issue touched by this mess. But I know this: it is morally wrong to simply say "well, he should have been born to richer parents." Woulda, coulda, shoulda doesn't really cut it for a young boy who is mute because a simple medical assist is well beyond his ability to magically produce. And anyone who cannot see how difficult and scarring that would be for a child...for a lifetime...has no heart.
Mr. ReddHedd and I live by our own little commitment: we help our families as much as we can whenever they need it, we help the folks we know who need a hand, and we do what we can in our community and further out whenever we can do so. We were talking about this last night, and how much of an impact it could have in the world if everyone were doing that all at once. But they aren't. How does that change? When? Why hasn't it changed already?
No child in America should be a throwaway child. Not one.
And no child should ever have to endure what James Lowe likely had to endure growing up in silence. I keep thinking, "there but for the grace of God, this could have been me." I know some of the folks reading out there have similarly difficult stories, and I wish I had better answers. I read about those parents campaing out in the field, waiting for medical care in a horse stall for their kids and I think, "if I were in the same situation, I'd do that for The Peanut's benefit in a heartbeat." Thankfully, we aren't in that situation. But I could not let this subject come up again without saying that it is past time we talked seriously about all of this -- because the way things are at the moment is not working. Not even close.
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Amen. It needs to change!
Christy!
ooh! zedalicious! Told ‘em downstairs. Good article, Christy!
We need to hope that the real America can come back. John Edwards gives me that hope. He spoke well on FTN. Could it be that a President would represent the people…for real?
My grandson age 2 was born with a cleft lip and palate.He has had the countries best care and now will be no different than any one else. Hes beautiful and speaks well. Such a difference.
No one likes the insurance companies (except the insurance companies and their investors, and the Joe Leibermans of the world) so can be begin to frame the health care debate in terms of “Insurance reform”?
Edwards nails it when he identifies the two Ameicas… One hundred thousands haves and 300 million have nots.
Health care has nothing to do with insurance.
Insurance is only a middle man sucking resources and denying care for the sake of profits to the middle man.
It’s like setting up a toll booth so only those who pay can drive on the road.
Kill insurance.
Redd,
Your compassion knows no bounds. Thank you.
Health care is a right not a privilege.
(((PEANUT))))
exactly, Redd…
Christy has a such a big heart. If only the world had more Christy’s. And she’s smart as a whip too. Wouldn’t that be something!
It’s a disgrace there are so many people who receive little or no health care in such an affluent nation. We can do better.
In terms of our health care systems woes not being met, one of the problems is that the people with their hands on the levers of power are personally shielded from the problem.
Although I am generally not much of an Edwards supporter, his idea that our elected federal officials lose their Cadillac heath insurance benefits might be worth exploring.
I recently attended a fund raising dinner. I looked across the room and realized that no one there had any problems accessing our health care system.
For the pols and their benefactors, this horrendous problem is not real. It is only a ‘concern.’
Only slightly OT;
From Giuliani’s economic advisor, Michael Boskin of Stanford,
by way of a Jonah Goldberg piece that I refuse to dignify with a link:
I’m sure that Stanford’s health plan doesn’t involve meeting your doctor in a horse stall.
allan_in_upstate @ 13
In fact I’m looking into Stanford’s health plan tomorrow. I’ll let you know.
It just shows what a total lie the Emergency Room comment by so many Republicans is. I was in the Emergency room for only a few hours with my Mom, but one man could not get care, he had fluid on the knee and the ER doc does not do that, had to refer him to a specialist.
Republicans must know it is a lie, but they repeat it over and over.
Even those of us fortunate enough to have “health insurance” struggle. I had surgery on my right hand in December of 2005, and I’m making monthly payments on a portion of the bill that the insurance company denied for no reason that I can fathom. I’m appealing the denial, but meantime, if I don’t make payments, my credit gets ruined.
Also, there’s this diary on kos: U.S. Doctors struggle to get paid as insurers “game the system”.
Christy,
Great post Christy. Thanks!
One favor? Can you possibly make a small edit to the post? Instead of “these people wait with their children” could it just read “and people wait” or “families wait.”
“These”, “them” and “those” are difficult words cross-culturally when dialogue about poverty is “in the room.” I know that was not the intent of the post and in fact quite the opposite.
Forgive me for suggesting, I know you work so hard to keep readers informed and addressing important issues…
I hear Edwards’s rhetoric but in practice his voting record in the Senate wasn’t stellar.
I’m sticking with Kucinich. He’s the only authentic Democrat left in the running.
It was such a lightning bolt moment when I read the NYTimes Mag piece — because I remembered the James Lowe story from last summer, and thought it might be the same group of docs…and it was.
This is such a complex set of issues — fixing one aspect doesn’t come close to fixing the rest of the mess. But this was such a compelling way to show the depth of the problem, I needed to talk about it this morning. I’m just sorry I’m so in and out today with The Peanut not feeling well. But I know you guys have a lot to say on this, and I’ll catch up on reading the comments as I can this morning.
Lindy @ 15
That’s the big honking problem that’s rearing up its head. Even people who might think that since they have insurance they’re okay, they’re getting hammered with increased arbitrary denials, higher co payments, etc. That’s hitting so many people, that we’re finally sitting up and taking notice.
To be brutally honest, as long as the “problem” was “only” as Christy described — an ignorable group of people completely denied decent care — it would probably limp on. But right now even if you’re a Bush lovin’ rethuglican, you’re going to notice WHEN (not if) your insurance company increasingly denies you reimbursement for necessary care.
When it hits that many homes, then it starts to hit the fan. I wish it were different, but there it is. I do think we’re reaching a critical point. *No one* I talk to thinks that the health “care” system is in good shape. (Now, what the solutions are, is another story, of course :-P )
I hope we have a chance to improve things and rework the system before this country goes so bankrupt that we can do nothing at all…
SanderO @ 7
Morning all! Nope- it’slike setting up a toll booth on the ONLY road so that only those who can pay get to drive.
HI
We think we’re the richest country in the world but this is how we treat the citizens.
Sad
jo6pac
Lindy @ 16
Write you Congressman, or newspaper maybe a letter from them would change the insurance company’s mind. I remember, one hospital went to bat for a patient, contening that the Cochlear Ear Implant was covered under the insurance policy, and after Eighteen months the insurance company agreed! That is one dedicated hospital employee! By the way the patient already paid for and got the implant, but the hospital employee kept at it, because it was the right thing to do.
A small OT (though it’s all related): OldCoastie’s diary on the California election initiative fraud is up and running. I recommend it because this is another republican ploy to game the system and steal votes and I think it needs to stay front and center.
Lindy @ 15
Hopefully by screwing the patients and the providers, the insurance companies are cutting their own throats. The insurance industry “games” the doctors, just like the patient. Denials, more paper work, delaying payment as long as possible.
Lindy @ 24
thanks - its starting to slip right down the page pretty quick!
OldCoastie @ 26
Recommended. It’s at 22 recs, head on over folks.
And if you’re not registered at kos, please do so you can support pups like OldCoastie.
OldCoastie @ 25
A shame they won’t let me vote to recommend it more than once *grin*.
Lindy @ 16
Or visit your local Congressman’s office, it would only probably take 10 minutes, of course call in advance, to be sure you can talk to someone, leave a copy of the bill and rejection letter, maybe a letter from them would be enough to change their minds.
egregious @ 26
egregious, I don’t see your recommend. (Nevah mind :))
peanutbutter @ 20
I think it will change when we see enough people with good health insurance trying to file for bankruptcy… it is no longer very difficult to exceed your lifetime benefits with one major illness.
Michale Boskin is fullashit.
I have been visiting Italy regularly for 30 years as my sister lives there and they have quite a decent and not declining quality of life. Look at their railroads, carless CBDs, their protection of the food supply, their access to health care. My brother in law who died a year ago had very expensive medical procedures which cost him nothing. I think a life of smoking did him in.
Lindy @ 30
Someone unspeakably took my nom de plume, which Immanentize said was ‘truly egregious’ and so I use this phrase at kos. The impostor has never made a diary or even commented as far as I can tell. Dog in the manger.
What I don’t understand is, as a former steelworker, I’m sort of used to people who have jobs in basic, huge industries like steel having health care fringe benefits. I don’t understand how the coal industry has gotten by all these years not providing health care as part of an employment package for families of their workers. It particularly makes no sense when you consider how dangerous that job is.
They are represented by a union, are they not? What does the union do? I ask, because if employers don’t supply health care benefits, then many unions do. Ask the teamsters about the benefits they supply. I get my share of my ex-husband’s retirement benefits from Prudential, who manages the Teamster’s retirement benefit fund. So, while I could understand someone who does not have a background in a basic industry like coal mining not having insurance, I am having a hard time wrapping my head around a man with coal mining in his background going this long without the operation to provide speech. It’s not that I don’t believe anything about the story, it’s just that it seems too appalling to grasp!
I know I sound like a broken record, but with what’s on the line, that’s ok.
Health care is a symptom of the underlying problem. The few (generally in the shape of corporations) have too much say-so, and they are endlessly greedy. Their greed is now manifest in the most blatant power grab in the history of the republic.
The many have too little say-so.
Only one candidate wants to break the status quo.
Everything else is insignificant.
Lindy @ 28
How does one recommend a d-kos diary? *he asks in a small voice, blushing*
Steve-AR @ 36
Steve-AR, you gotta be registered.
Steve-AR @ 36
Register, log in, look on the right hand column down a little and there is a button “Recommend”
Steve-AR @ 35
Steve, if you log in at daily kos, the “recommend this diary” shows up on the right sidebar. If you’re not registered, it is painless to do so and allows you to recommend diaries. Once you register, refresh the diary and you should see the button.
There are now people taking their own insurance into their own hands. I have been reading about groups of people paying into public accounts instead of insurance policies and then they submit their bills to the accountant who oversees the books for the account. Bills are paid 100%. It’s a bit of an ebb and flow.
The patients also find they are getting better care because their bills are paid in cash. I think it would be interesting to see more groups like this emerge. Doc’s could charge a lower rate for those paying in cash because of lower administrative overhead due to the bill not needing to be submitted to insurance… What would the insurance companies do if many started to put their $$$ into public medical trusts..??? Doc’s would be thrilled!
egregious @ 38
OK..thanks
Ann in AZ — It depends on who owns the mine, and whether it is union or not, and whether it is a large company or a tiny operation…and about a bazillion other facts. I don’t know the type of mine that Lowe worked in but in my experience, a smaller non-union mine that is privately owned doesn’t often have insurance for workers…because it is really, realy expensive to get it for a small business operation and for the workers to pay their out-of-pocket share….and, about a bazillion other issues.
When I was in private practice, we were a very small business and looked into any number of insurance possibilities for the folks who worked for us — and could not find anything that we and they could afford, even through the local chamber of commerce plan and the state bar plan…and every other plan we investigated. And it’s worse now than it was back then. (We ended up doing a sort of quasi-health savings plan and then chipping in on med bills for one of our secretaries who had a particularly difficult issue for a while.)
So, basically, it depends on the type of mine that he worked in and such, and that’s just for starters. Like I said above, there are so many intertwined issues.
I think my family is one major illness or medical event away from bankruptcy. (We are all healthy at present) We are basic middle classers with average savings and holdings. We have ‘above average’ health insurance coverage from spouse’s employer and yet . . .
My friends think I am crazy for thinking this
Hubby and I have insurance. Whenever we see a letter from them the standing reaction is “Here’s another explanation of why they won’t pay our med bill”.
And as for the ER lie: My niece dislocated her knee in an evening basketball game. Went to the ER and was told ins wouldn’t cover it because she wasn’t referred by her primary physician.
Wow — THIS is disturbing:
The suit, filed in 2003 in federal court in Dallas, and unsealed this year, argues that improper sales practices, together with erroneous accounting, are invisibly draining millions of dollars out of vital public programs like Medicare through overcharges or unauthorized uses. While whistle-blower cases typically involve, at most, a handful of companies, Ms. Fitzgerald’s alleges systemic fraud across a whole network of companies and more than 7,000 health care institutions.
Well, that could boost costs, now couldn’t it?
Sandman @ 23
That’s interesting, I don’t typically hear about fusses being made over CI payments at all. In fact, what I have scratched my head over constantly is why CI is paid for without question, but HA are almost never, ever covered…! I figure someone somewhere is somehow making money hand over fist by paying for CI, but I don’t know how.
solai at 43 — I have found that sending a written objection to the insurance company when they balk on something like that has had very good results. They are in the business of not paying claims if they can get away with it — because for every claim not paid, they make money. If you push back in writing, they are required to audit the claim internally — and it leaves a paper trail. And if they refuse to pay a claim without just cause under the policy, it leaves them open to a bad faith claim…with a paper trail.
Always object to problems with your insurance company in writing. By all means, make phone calls — but follow-up with a written memorandum detailing the discussion. They cannot leave a written objection unanswered in a file…and you are more likely to get a real review and change of policy that way. Just FYI…
OldCoastie @ 31
I think you’re very right. Talk about another bad bill (the bankruptcy one). You should have heard me ranting on that one back then (but I wasn’t here then ;-) )
Ahgoo @ 43
You are right and your friends are delusional..I have the same discussion…”We don’t want socialized medicine, Hillary will give us socialized medicine(hooray)..Me..”You are one major illness from bankruptcy” them ” We have health insurance me “Just wait”
The intense “brain washing” of American Society since the “Great Society” days has been very effective. The Ronnie era linking of social programs with “free stuff for the lazy “N’s” and brown people was also effective. The coming economic crash is going to be a come to Jeebus moment for a lot of people. My fear is that we will head toward an “American Populism” rather than FDR “New Deal” society.
peanutbutter, what is an HA?
Christy Hardin Smith @ 45
Well, that could boost costs, now couldn’t it?
Medical suppliers and the drug companies routinely shower gifts on Doctors and Administrators.
At the clinic I go to the doctors and staff frequently have extravagant lunches catered in by these companies.
The poor and the voiceless don’t have a chance.
How come as a NASA subcontractor, I could not accept a fruit basket? I want my free lunch!
Cookie Krongard is being fried on C-Span1 right now. Department of State IG.
Sandman @ 53
Shays is a chicken leg
Christy Hardin Smith @ 47
Using terms such as “Bad Faith” and you will be receiving a letter from my attorney can be helpful. Another thing that seems to be helpful is to say something like “gee whiz..I don’t know much about this stuff..if my appeals letter fails..is the! next step to send a complaint to the State Insurance Commission..The response on several occasions has been “NOOOOOOO!!!!”
There are other things do do first.
Shays maybe the only republican congressman in the Northeast and faces a real challenge in 2008.
Sandman @ 56
say good night Chris
I like Lynch questionings
(sorry to be OT)
Lindy @ 28
Where the heck do you recommend? Or is that part of the 24 hour block when you register? (I just registered — as Peanut Butter, shocked that no one else has taken that at Kos…)
I worked at Duke Hospital for three years, and the money that’s made off of sickness and ageing in this country, is an obscenity.
The grubbiest porn-flick ever made is an act of grace, compaired with what is happening to poor and working-class people who need medical care in America.
BTW, I give Hillary points for trying, when she was first lady, to change it. That she (and Bill) failed, is not her fault. It was a noble effort.
The anti-Clinton lynch-mob was in full cry, and the Health Care “industry (the fact that that phrase describes the situation tells us just how fucked up things are), with plenty of help from the GOP, made sure that the idea of any real change; that is, any meaningful move away from “privatizing” so much human suffering, died a-borning.
Now, it’s a different story.
This election, with the 350-pound-Iraq-turd hanging around their necks, the conservatives won’t be nearly agile enough dodge the anger about health care and other issues.
BUT, Iraq is the catalyst for change. BIG change. It has to be. And we have to have a nominee that can use it.
And Clinton has so many, many, minuses.
It’s pretty amazing when you think about it; she has them for the conservatives, and she sure has them for us.
Somewhere in that equation, the idea that she’s politically “savvy”, has to take it in the shorts. :o)
Sandman @ 56
He’s one of the few R congresscritters left in the NE.
KLynn @ 40
While this isn’t a practical way for everyone in this country to use, I do adore the notion of utterly cutting out the insurance companies.
As long as these things are put together as strictly non profit, this is interesting…
peanutbutter @ 58
I think when I signed up a thousand years ago, there was a 24 hour wait period before you could recommend, but I don’t know what the current policy is.
I’m thinking I should have named my diary something like “I hate Hillary” and that might have gotten it popped up on the rec list… instead, only borin’ ol’ fraud… ordinary crooks and liars…
;-)
Morning pups.
Great post Christy.
To my mind, the biggest shame in this is the number of Americans who think the status quo is just fine.
eCAHNomics @ 60
He’s THE ONLY Republican Congressman left in New England.
We still have the two NH legacy hacks in the Senate and Sens. Snowe and Collins in Maine.
-GSD
Christy Hardin Smith @ 42
Wow! You know, I can’t say that I didn’t appreciate what I had as a steelworker. Actually, it was appreciation of what they had to offer that drew me there to begin with. Not only did I get a living wage, very important for a single mother with two kids and little or no child support, but I also had fringe benefits that affected my future life and that of my children in so many ways!
Yet I also remember that when another, much smaller “steel company” (it was actually more of a finishing plant, not a company that made steel from raw materials like mine did) without good management went belly up, that the workers lost more than their jobs, they also lost their retirement benefits. The company had used the money, so the retirement fund was also bankrupt. And then, of course, there is the fact that largely due to dumping and some other factors (aluminum is cheaper, etc.) the company I worked for, one of the “big five” steel companies, Bethlehem Steel, is also bankrupt. I’m not sure if their bankruptcy has been discharged or not yet.
Christy Hardin Smith @ 47
I always make that my main Dr. and I have the thing in mind and he writes it that way. This is really important when you deal with your Surgeon. They will help if you have shown your interest, most of them don’t like the industry.
jopac
Home recovering from Surgery
eCAHNomics @ 60
Just to be clear, I meant Maine, New Hampshire, Vermont, Roade Island, Massachusetts, and Connecticut. One House of Representative is Republican and that is Chris (say goodbye) Shays.
jo6pac — hope your recovery goes well.
solai @ 44
Now that’s utterly ridiculous and should be illegal anytime “Emergency” is in the name of the service provider.
YEA! I made it on to the Rec list!
OT..Just read the Rove News Week piece..he make a strong case for electing Hillary.
(snip)
“And her? She tends to be, well, hard and brittle.
(snip)
It is a small but telling story: she is tough, persistent and forgets nothing.
(snip)
Be strong on Iraq. Democrats have bet on failure. That’s looking to be an increasingly bad wager, given the remarkable progress seen recently in Iraq. If the question is who will get out quicker, the answer is Hillary.
(snip)
She lacks her husband’s political gifts and rejects much of the centrism he championed. The health-care fiasco showed her style and ideology.”
Sort of sounds the person we need..A hard, brave, lefty, with a long memory who will get us out of Iraq. The “evil Hillary” Fascist slayer and bringing ruin and destruction to the GOP. No wonder the wingnuts don’t sleep well.
just added the recommeded tag at the DK Old Coastie diary
Made the rec list
You might be interested in one of our readers. Dr. C. who describes himself as:
He’s said before most recently in this post:
Our President the Black Pot that when push comes to shove he’ll treat people for free.
(emphasis added by me)
He writes on various matters - if you like kids, and he obviously does don’t miss his regular Friday crab blogging.
Christy why not leave a comment on his blog asking him if he’d write about some of the things he has to struggle with as a doctor in a poor rural community?
Poor Turdblossom. Two decades of grooming a world leader and in his first public outing as a ‘journalist’ he can’t mention a single fucking accomplishment.
Yes Karl, some of us are smart enough to see the meaning in what you DON’T say.
-GSD
This kind of stuff gets me every time. I really should do a big post at my other blog about my fight to get mental health help for my teenage son and about my fight to keep coverages for myself. We’re not even poor anymore and I’ve had an absolutely insane time.
My medicine that I get infused every seven weeks now costs me $558 every time, due to new insurance. What kind of insanity is that? It’s the stuff that keeps me able to move and now, I have to start the search for treatment all over again!
it becomes increasingly obvious that edwards is the only guy in the race who is saying the right things doing the right things and has a chance of winning (sorry dennis).
the rest is all just a dust-up.
we should get behind this guy asap, and see him through. he will do well in iowa, which will give him the visibility — i would be stunned if he doesn’t finish in the top two in the caucuses, and think he could well take them.
after that it’s a scramble, because the clinton forces will join forces with repubs to trash him relentlessly.
Left to read Old Coastie’s diary and stayed at DKos awhile. Thanks to all for the advice. As to my niece and the ER. The claim was eventually paid, after a fight. Always need to fight.
Liss @ 75
(((Liss)))
you should! that would be helpful to the next family facing a similar situation, and also good for shining a light on the mess we call mental heath care in the USA
Elliott @ 57
Shays got saved last time because of Slummy Joe. Not this time.
Cookie Krongard graduated Harvard Law.
Alberto Gonzales graduated Harvard Law.
Things are not looking so good for them.
Sandman @ 80
Harvard Law needs a good weed-out ethics course. Required, naturally.
Remember the old days, say 25yrs ago? Hubby had free ins thru work and so did I. My first 2 pregnancies were 100% covered. What one ins. didn’t pay, the other picked up. Never even saw a bill. And, for my 1st child, I stayed in hospital for 4 days because my bloodcount was so low. I’d be willing to let the ins. companies stay in business if they’d just pay the damn bills and not interfere with medical advice.
thank you all for the DKos recommends… I see Ron Shepson (sp?) is gonna do a little tour in my area for petitioners…
Elliott @ 78
Thanks. That was the original plan with that blog. I’ve been fighting three years to help my son with what has turned out to be extreme PTSD and it’s such a convoluted MESS! Actually, I’m going to work on getting a job as a parent advocate at the state-contracted facility that he’s been at and work on finding out how to be a peer counselor, as well.
As for me, I have hypothyroidism, Crohn’s disease, psoriasis, and either Crohn’s or psoriatic arthritis. I was barely managing along on Cadillac-style insurance and the company just changed. All of a sudden, the things that help me survive aren’t covered sufficiently anymore. It’s time to start bitching to the state insurance commission and appearing at the local legislature.
Some copays are now in the $30-$40 range and this will get the attention of a lot of people who never gave a it much thought before.
When I became the primary caretaker for may parents in the 90s it took me 7 months to straighten out the insurance mess. I can only imagine how bad it is now.